Poll Results: Doctor Diagnosis

Lyme Process: How it starts

1. You visit your doctor with various “weird” symptoms causing you anxiety and concern
2. They run labs, you’re told there’s nothing wrong with you. Out of precaution they’ll send you to a neurologist for example, MRI hopefully is negative. If it’s positive, it doesn’t mean you have ALS or MS, you may have, or you have Lyme. Your standard Lyme test was probably negative, even if you have Lyme.
3. They’ll confirm there’s nothing wrong with you, and offer a psychologist
4. You visit the hospital, they tell you to speak to a psychologist because there’s nothing wrong with you.
5. If your basic doctor Lyme test was positive, the standard treatment will unlikely make you better, therefore seek medication for a longer period than the default and source it yourself.
6. You start drawing down on savings to get answers trying everything possible.
7. You’re here asking random people on the internet what’s wrong, thinking about suicide and sick of being gaslit.

My Symptoms

My setup to this was that I’d had a lot of antibiotics as an child, travelled extensively and to the worst countries in the world, lived around a deer park and brother was diagnosed with MS 15 years ago, presenting to the ER with Bell’s Palsy. I’m pushing my brother to get a blood examination because out symptoms are eerily similar, and I don’t believe in coincidences.

I started gradually getting tired knowing something wasn’t right. This progressed over months to then having nerve root pain in the lower back and spine. Next was chest pain and weakness in my legs. The escalation came with electric sensations shooting through my legs, electrified skin etc. I’ve listed the majority of symptoms below:

1. Parasthesia of the face
2. Tinnitus
3. Electrified skin
4. My legs and arms didn’t work initially after waking
5. Freezing and red hot hands & feet
6. Tingling, pins & needles
7. Twitching
8. Night sweats
9. Off rashes that would appear over my entire body, accompanied by radom internal organ pain
10. An intense burning sensation that would past through the chest and lungs. I believe this is Babesia
11. Flushing
12. Confusion
13. Anxiety
14. Loss or urinary sensation
15. Loss of genital sensation
16. Pulsating head sensation like my head was going to blow up
17. I was unable to walk
18. Tightness in the chest / ribcage
19. Tremors. Internal vibrations inside my body and spine
20. Crawling sensations under the skin & brain
21. Red rash over scalp
22. Breathlessness & air hunger
23. Skin pain
24. Testicular pain
25. Shingles
26. Blurred vision
27. Severe muscle ache and pain
28. Emotional volatility
29. Depersonalization
30. Headaches
31. “Wave” sensation running through the body. Also like temporarily being connected to the mains electrical grid
32. Small Fibre Neuropathy
33. For sure others but I can’t remember..

My Diagnosis

I couldn’t give a shit what thick doctors think, they’re probably the dumbest group of people in an industry I’ve come across. Initially I was referred to the antiviral clinic for Chronic Fatigue and told I had psychological problems. I obviously ignored that. I went and ordered around 100 books of amazon to narrow down the area with the highest probability, then started more targeted testing. Note I have diagnosed myself based on testing etc. I’m waiting on a LLMD appointment and an infectious Disease appointment. I’m only seeing a doctor so I can get liquid atovoquone (Mepron). Malarone just isn’t cutting it, but it helps for sure.

So far I’ve found the following:

• Lyme
• Bartonella
• Babesia
• EBV
• VZV Shingles
• Mycoplasma Pneumonia

My Protocol

Name	Brand	Dosage	Comment
Andrographis	Supreme Nutrition	2 pills three times daily	For all issues
Ashwaghanda	Supreme Nutrition	2 pills twice daily
Artemesia	Supreme Nutrition	2 pills three times daily	Babesia
Artemisinin	Researched Nutritionals	3 pills three times daily. 3 days on, 11 days off.	Babesia
Chinese Skullcap 1:3	Napiers	1.5ml three times daily	Babesia, borellia, bartonella
Cats Claw	Nutramedix	30 drops three times daily	Borellia, Bartonella
Japanese Knotweed 1:3	Napiers	3ml three times daily	For all
Sida Acuta 1:3	Napiers	0.75ml three times daily	For tremors, sida acuta & bartonella
Cryptolepis 1:5	Napiers	4ml three times daily	For all
Houttinynia	Nutramedix	30 drops three times daily	Bartonella
Stevia	Nutramedix	15 drops twice daily	Biofilms
Bidens Pilosa 1:5	Napiers	4ml three times daily	Babesia

Supplements

Name	Comment	Dosage
Research Nutritionals Multimessenger	Immune Support	3 pills once daily
Research Nutritionals Microbinate	EBV, GI and BioFilms partially	2 pills once daily
Research Nutritionals Tr-Fortify Glutathione	Energy & Detox	1 tsp once daily (5ml)
Inetegrative Theraputics B Complex	Energy	2 pills once daily
Nordic Naturals Omega 3	Inflammation	2 pills once daily
Thorne Phytosome Curcumin	Inflammation and cytokines reduction	2 pills once daily
Pure Encapsultations Liver GI	Detox	2 pills once daily
Magnesium Malate	Overall	1 pill once daily
Modified Citrus Pectin	Binder	3 pills once daily
Lumbrokinase	Fibrin Nests	2 pills twice daily
MakeWell Bab+	Babesia specific	2 pills once daily
Doctor Inspired Formulations Cinnamon, Clove & Oregano	Biofilms	1 pills twice daily
Designs for Health EGCG	Bartonella	1 pill twice daily
RG3 Nasal Spray	Neurological lyme	2 sprays twice daily

Prescription

Name	Comment	Dose
Malarone	Check potassium levels, liver, kidneys before or during. Short term solution.	1 pill twice daily

What has helped me most?

• Acyclovir
• Bidens Pilosa (Blackjacks): For babesia, specifically stopped my air hunger
• Cryptolepis
• Sida Acuta: For tremors it really helped
• Malarone: For babesia
• Tri-Fortify Glutathione: For energy and detox
• Researched Nutritionals Multimessenger: For immune system stabilization
• Houttinyia: For bartonella symptoms
• RG3 Nasal Spray: For neuroinflammation